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When I’m In the Hole Every Direction Is Uphill

I am writing this primarily for the benefit of other sufferers so that they know that they are not alone.

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Well – it’s one of those days, and has been for the past three days now. A storm front has been pushing in from the West, and it has been taking its sweet time. I feel as if I’m walking around with a lead blanket thrown over me, and even though the sun is bright, I cannot enjoy it, because it makes my eyes sting, and suppresses me as if I was having the lamp of an interrogator shown squarely into my face.

This is what I refer to as being in the Hole. Yeah, I know, Alice In Chains had a song by the same name. But this hole is not a drug-of-choice induced hell. I didn’t elect to go into this hole, I was pushed by an unknown force. I was dragged kicking and screaming into it.

But if you’re one of us, I’m not telling you anything that you don’t already know about. I’m just here to tell you that I understand, and to reassure you that you are not mad. The Hole is real.

The problem with it, is that I never know where the edge is until I get there, and I never know how far I’m going to go in.

For the past three days, I’ve started out with the ‘Okay, I can do this’ attitude. But right in the middle of it, I slide directly down the dreaded ‘Okay fuck this’ slope of desperation within the span of a minute.

The only recourse is that damned bed. How I hate that freaking bed.

I’ve grown to where I even dread eating, because I know it is going to hit me like a sledgehammer. I like food, and I like to eat, I just hate what it does to me anymore.

This is what makes it so damned hard to plan anything. And we can try to explain it to others, but the usual response – the eye rolling, the sighs, and the ‘I’m tired too, after working all day’ lines – serve no other purpose but to anger, and farther isolate us.

And we begin to worry. Even close family members may become preoccupied with work, or find reasons to leave us alone. As they grow more distant, they do not realise that, when we are having bad days, ignoring and avoiding us makes our depression more difficult to manage.

We begin to wonder if cherished loved ones won’t suddenly abandon us on the days we need them most. We may even begin to fear that those same individuals may one day leave us completely. We have no reason to feel this way, and that, too, angers us.

We all know that no amount of work has ever left us feeling this drained. And we all know that when we wake up in the morning, we aren’t going to feel much better than we did the night before, irrespective how well or long we sleep.

Sometimes we wish we’d never wake up, because this kind of life leaves one very little to look forward to, especially when those who claim to love us push us away with their apathy.

Many days, we are left only to one another, and ofttimes, distance forbids us from sharing thoughts, tears, and the day with one another.

I do not know who many of you are; others, we have consoled one another late into the night on social media platforms. Our faces do not matter. Only our understanding. Because we are the only ones who truly believe one another without reservation.

Our club is not one of pride, and our bond is not one of secret handshakes, but of desperation.

If you are having one of those days, take heart. I go into that hole often. As lonely as it can sometimes feel, you are not alone.

What Is True Will?

You’ll often hear ads on television and radio which promote motivational speakers. These speakers often focus on the use of ‘will power’ in order to get monumental tasks accomplished. Thousands of posters, and countless memes have been dedicated to the use of positive thought and will power.

But what is will power, and is anyone actually in possession of true will?

How many times can you recall yourself saying something to the effect of, “I’ll never do that again”, or “From now on, I’m going to______________”? But how many times did you find yourself doing ‘that’ again, or forgetting the vow you solemnly made to yourself ‘from now on’?

These sorts of shattered illusions are what expose the true measure of our will.

When I was twenty years old, I made a short list of objectives that I fully intended to accomplish by the time I was thirty. I didn’t reach any of the goals. Not a single one.

But my intentions were good, of course. It seems that we always start out with the best of intentions in whatever we endeavour to do. Right before things go straight to hell.

So for the next thirty years, I was determined to see if there was one thing in my life that I could see through from beginning to end. One thing – surely couldn’t be too terribly difficult to accomplish. What, then, was the one thing that I was certain that I could devote the rest of my life to? Well, the one thing that I valued among everything else was music. I had begun my quest as a songwriter around the same age that I’d made my list, and it is true that I had not abandoned the journey. The fact was, that I had yet to be come successful at it. My dream was to be able to play several instruments tolerably, engineer sound, and produce my own material. Bands such as Todd Rundgren and Steely Dan were huge influences in this respect.

Success is a term that is generally associated with money and being well-known, respected among one’s peers, and the like.

Nonetheless, I persevered, and although I had learned a great many things in relation to the field – I was working in a retail establishment which sold musical instruments and sound equipment – I had still to make the strides that I had intended by the time that I was forty. Often it was necessary to remind myself why I had begun in the first place.

Throughout the course of rearing two children, and working all kinds of day jobs, I redoubled my efforts to set money aside for musical gear, and recording equipment. I also set aside one hour a day to practice at my craft, this was apart and completely different from the actual playing of music, which would consume even more of the time that I had precious little of.

By the time I was fifty years old, I had become connected to my Muse, and was writing profusely. The musical path that I had begun was a bit of a surprise, but I followed my Muse wherever it led without question. I completed my studio, which I christened Good Intentions, and chose ‘Hell Paving Company’ for the name of my publishing domain. It cannot be said that I was not acquainted with the irony of it all by this time.

In 2014, I tore my studio down with the intent of erecting it in another, more suitable room of the home. All of my gear sat in a corner collecting dust for the next three years. Chronic Fatigue is a cruel mistress, and my life had been slowing to a crawl since I had contracted it in November of 2007.

Then one night last month, while lying in bed, I was listening to the 20 odd sketches of tunes that I had recorded into my Android. I stared over into the dark corner that hid all of my recording equipment.

“Starting tomorrow, I’m going to start putting my studio back together, even if it kills me.” I told myself. The task was daunting.  But I knew that if I died before getting the tunes – which the Muse was still being so charitable in supplying me with – properly recorded, I would go to hell. Hell is a completely different place for writers. I imagine it to be a place where only poorly maintained manual typewriters exist, paper is at a premium, and the thoughts come too quickly to transcribe.

Mainly, however, I couldn’t bear the thought of leaving these tunes orphaned. Nobody except I had heard them, and my task was to get them recorded and give everyone else a chance to hear the wonderful imagination that the Muse is so blessed with, for you see, I do not feel that these pieces of music are mine. I have been assigned a task, and it is up to me alone to complete these pieces.

Eight days later, although my back and shoulders were killing me, the studio was together, and I found myself becoming painfully reacquainted with the plethora of cables and the routing of which I had all but forgotten.

Today I fired up all of the components, and with the exception of the ancient synthesizer, everything seems to be working. Maybe if I just jiggle the handle….

So I have discovered that perhaps there is indeed a bit of true will left inside of me at the age of 61. And that I may have, in fact, discovered the meaning of true success.

 

CFS Worst Case Scenario (Typical Day)

I’m going to write a bit today, not about music, but about this damned affliction that I have mysteriously been strapped with, generally referred to as Chronic Fatigue Syndrome.

I’ve only attempted to relate this disease in one or two other blog entries, but it seems to garner a decent bit of attention when I do, so I’m going to take a stab at it today, primarily because today is one of those days that I almost think that I’d be better off dead, although that may sound a tad harsh.

No, I’m not contemplating suicide. I don’t have the guts to do that to everyone else involved in my life that such an action would inevitably and adversely effect. The stigma surrounding CFS alone is bad enough. The inability, or unwillingness, of the scientific community to get to the root cause of the disease is enough to drive an individual into deep depression, and to withdraw from society.

No fun can be had. No breaks can be taken. Nothing is available that will alleviate the constant dull headache – the constant pressure at the top of my eyeballs and consequential sensitivity to sunlight. Nothing can take away the God-awful feeling of constant sluggishness that I feel from the moment I rise to the time that I fall asleep.

I have most recently described the feeling as one of having a constant hangover, coupled with that of coming down with influenza. I am aware that this may be impossible for those who do not suffer from the affliction to identify with this notion, or even believe that it is possible to feel this way 100 percent of the time, but I can assure the reader that this is the way that it is.

And then, I have to awake and begin the day. The difficulty of having to get through a day, accompanied with these symptoms, cannot be over emphasised. There are things that need to be done around the house, and I have to do them. The smallest tasks are sometimes nearly impossible to surmount, because the symptoms that I have just outlined are only baseline symptoms. Sometimes they are considerably worse, and other days they are marginally better. On the better days, it almost reminds me of how good I used to feel. If one is not careful, this will bring on a bout of depression, and I learned that lesson the hard way, so I must put that out of my mind, and be glad that I’m having a “good” day. It is almost laughable to refer to it as good.

One has to rest several times while washing the dishes. One has to rest after cleaning the cats litter boxes. One has to rest while sweeping and mopping the floor. One has to take breaks while cooking a meal.

Some have asked, why not use a dishwasher? Because washing dishes gives me something to do.

Others have asked why I don’t order out. Because it’s too expensive, and again, cooking gives me something to do.

One inquired, “Why don’t you lose the cats, dude?” Because the cats give purpose to my life. I talk to them, I fuss at them, I cry to them, and I tell them my troubles, and they respond by nuzzling and marking me. Sometimes that in and of itself is annoying, but I tolerate it, because if I were completely alone, I would begin to question the value of my life, and that is best not to ponder.

What it seems that many do not understand, is that as humans, we want things to do. If we begin to strip away ‘doing’ in order to ‘not do’, then our lives reach a point to where we feel useless and unnecessary.

Lacking the ability to do an honest day’s work anymore, one’s life becomes amazingly empty. I used to imagine having nothing but all the time that I required to do nothing but write and record my music. Having reached this point however, has been a mixed blessing, as recording music has become a major task. Singing is a task. I have to pause the process and rest between verses, because singing requires an incredible amount of energy. Either it always did and I didn’t notice because I had a seemingly endless store of it, or it did but it didn’t matter because I had said endless store.

These dishes – the litter boxes – the mopping and the sweeping. These tasks have taken on new meaning in my life in the past nine years, and if you can’t imagine how that must feel… you should consider yourself very fortunate indeed.